20th June 2023
Oh my word – I didn’t realise how long it’s been since I last wrote a blog post. A few kind people have contacted me separately to see if I’m still er, around.
And yep, I sure am around. Although the going has not been easy these past few months and I've found it a bit difficult in what to write.
To catch up – I’ve now been through 8 cycles of immunotherapy and unfortunately CT scans are indicating that the treatment isn’t having any real effect on the tumours. In actual fact, the latest CT scan is showing that my tumours Tom, Dick and Harry are now coalescing together into one mass (or bulk soft tissue) as they like to call it.
Which isn’t particularly good news – although not all bad right now because still not showing any further spread, it’s seems I’m entering a new phase, entitled ‘Disease Progression’.
Well, to a simpleton like me, it’s all been progressing for the last 3 years. But to the medics it’s all expected, when the first two lines of treatment (Chemotherapy and then Immunotherapy), haven’t been successful.
So right now, we’re at a bit of a crossroads in terms of what’s next.
There is the possibility of joining a clinical trial of some new treatments under test conditions. I’ll be finding out more about this over the next 2 or 3 weeks. From prior experience looking at trials, there are a number of known unknowns and indeed unknown unknowns. So quite a lot to consider before leaving the care of my dear Dr Grant and entrusting others, most likely at a hospital in London.
The other – and seemingly only choice, is a 3rd line chemotherapy with Docetaxel, which is a pretty aggressive chemo drug. Scraping the bottom of the test-tube, kind of thing I reckon😉
But at least this would be with Dr Grant and his superb team here in Gloucestershire
Anyway, I hope to find out more soon about both and then will have to decide on a route.
In the meantime, now that Tom, Dick and Harry and joining together into one mass (so to speak), I’ve been giving thought to a new name for it.
After just a few nanoseconds of brain strain, I’ve decided on Big Dick as the new name for my right-lung soft tissue thingy.
Absolutely not to be confused with any other soft-tissue thingies.
Make a note people 😊
Until next time…
Stay safe
Woz
You’re a fighter, you’re a champion Wozza, keep on doing what you’re doing ….
Yeah, just keep taking the tablets 😉
xx
Hiya Garbs ,that’s spooky , was actually saying to Les haven’t heard anything from you for a while. Was going to drop you line when up your pops you email.
Well I hope they sort the Big Dick out asap . It’s a similar cross some of us have had to bear for years — not . 😂
Still getting those positive vibes so keep them coming.
Hopefully have a meet up soon -/ soon as I can get a weekend free .
Speak soon .
Jim n Les
Hey guys, yeah sorry it’s been a while. Treatment plan permitting, hoping to be in Barkingside last week of July.
See if we can meet up then?
No matter which route you choose to go it means you´re moving and pro actively continuing the fight and that´s the Wozzer we love and admire!
Our positive thoughts are with you bro!!!
Thanks guys – I think of you a lot too. Just so difficult to get over to see y’all any time soon.
Take care xx
Hi there thinking about you love the new name – a good enemy to fight – just need informed decisions about the right weapons!
Sending love
Prue xx
Yeah, hoping to have a decision within a couple of weeks and then can focus again xx
I am hoping you can get further treatment. Your name for the union of Tom, Dick, and Harry had me laughing. I was going to suggest Big Bang until I read Big Dick. Sending love and determination your way!
Jayne
Yes, I’ll definitely be having more treatment – I’ve even still go choices! Just gotta find out some more in the next coupla weeks.xx